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The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.

The CdLS Foundation employs a professional staff, who are available to provide support and information, and help with fundraising events and awareness activities.


CdlS World has been founded in 2001 in occasion of the first International CdLS Conference and currently it's members support families in algeria , argentina , australia , austria , belgium , brazil , canada , colombia , denmark , finland , france , germany , ireland , israel , italy , malaysia , netherlands , new zealand , norway , philippines , poland , portugal , singapore , spain , sweden , switzerland , united kingdom , united states  and is maintaining contact with single  families in many more countries. We welcome groups that would like to join the federation. 

CdLS World; what do we do?

  1. From all over the world the Experts who know most about CdLS and a specific topic have formed a international Scientific Advise Committee (SAC). We make sure the SAC is informed about needs of the families and caretakers, so they can publish relevant news, present on conferences and answer questions in our Ask the Expert service;
  2. To act as a forum of best practice for support group services for people with CdLS, including organizing an International Conference every two years;
  3. to act as a resource base for the wider families of people affected by CdLS throughout the world for both research and for families.  

Our community around CdLS

 

Our national contact points for support

Vereniging Cornelia de Lange syndroom

Netherlands, Belgium

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Other numbers

Our communities

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Dansk

Cornelia de Lange foreningen

denmarknorwayswedenfinland
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English

CdLS Foundation UK and Ireland

united kingdomireland
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

spain
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English

Canadian CdLS Foundation

canada
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

israel
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

germanyaustriaswitzerland
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Español

Comunidad Argentina del Sindrome Cornelia de Lange

argentina
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Português

Associação Brasileira Síndrome Cornélia de Lange

brazil
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

italy
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portugal
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Nederlands

Vereniging Cornelia de Lange syndroom

netherlandsbelgium
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Français

ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE

franceswitzerlandbelgiumalgeria
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

poland
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

united states
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

australianew zealandmalaysiaphilippinessingapore
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Español

Fundación CdLS COLOMBIA

colombia

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org