Ask the expert

Ask our experts


These questions and answers are collected for and by people with Cornelia de Lange Syndrome (CdLS) and professional experts around CdLS.

In doing so, we believe to be a helpful resource for those affected by CdLS in their search for answers. Rare, but strong together!

Cornelia de Lange syndrome (CdLS) is a rare genetic disorder. Many people have never heard of it before. It causes several physical, cognitive and medical challenges. Although no two children with this condition are the same, there are many similarities in the external features and behaviour.


About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org