expertise centrum Cornelia de Lange syndroom

welcome

to the expertise centrum Cornelia de Lange syndroom

Goal of expertise centrum Cornelia de Lange syndroom

Target of the expertise centrum Cornelia de Lange syndroom

The Cornelia de Lange Syndrome expertise centre is there for all people with Cornelia de Lange syndrome and their families and/or carers. As a centre of expertise, we combine our knowledge of the syndrome and support and advise patients, their families and their treating physicians. 

  

Team

Kinderarts

Leonie Menke

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Sylvia huisman

Services/qualifications expertise centrum Cornelia de Lange syndroom

Expertise and/or treatment center
1Has a Multidisciplinary team and/or approach to disorder
2Has proven extensive knowledge to treat condition
3Secures this knowledge about the disorder in a colloborative way with association and other (international) institutes/organizations
4Carries out knowledge at national and/or international meetings and conferences and publishes via the association
5Ensures funding of disorder-relevant areas
Research center
6Research that is important to understand the cause, disorders and/or emotions of disorder
7Has proven comprehensive knowledge of the condition
8Secures this knowledge about the disorder in a colloborative way with association and other (international) institutes/organizations
9Ensures funding of disorder-relevant areas
10Carries out knowledge at national and/or international meetings and conferences and publications through the association
Practical info

Practical info

Make an appointment

The consultation hours of the expertise centre take place on every 2nd and 4th Tuesday afternoon of the month. If you would like to make an appointment for the consultation hour, please send an e-mail. You can send the referral letter from your doctor, for example the general practitioner or another specialist, with this e-mail. You can also indicate on which Tuesdays you could visit the outpatient clinic in the coming months. When planning your appointment, we will take your preferred day(s) into account as much as possible.

Bring along

We ask you to bring the following with you when visiting the clinic:
Appointment confirmation
Appointment confirmation.
AUMC patient card and appointment card, if you already have one.
AUMC patient card and appointment card, if you already have one.
Valid insurance card the person with Cornelia de Lange syndrome
Valid insurance card the person with Cornelia de Lange syndrome.
Identity card of the person with Cornelia de Lange syndrome and yourself
Identity card of the person with Cornelia de Lange syndrome and yourself (passport, driving licence, identity card or * tourist card).
Growth data
Growth data information of the consultation bureau, if available.
List of medication and specially adapted aids
List of medication and specially adapted aids, if applicable.
Familiar toys
Familiar toys for your child, if desired.
Brieven
Letters about your child written by other doctors, if you have them.
Cost

Cost

Visits to the expertise clinic are generally reimbursed by your health insurer (when you are a resident of The Netherlands). We ask you to contact your insurer prior to your appointment to ask whether your visit to an expertisepoli is indeed reimbursed. If this is not the case, we would like to ask you to mail us this prior to your appointment.
Contact

Contact

expertise centrum Cornelia de Lange syndroom
( part of it AMC Expertise centrum Cornelia de Lange )

Polikliniek Kindergeneeskunde, bouwdeel A0, wachtkamer 2
Meiwerfdreef 9
Postbus 22660
1100 DD Amsterdam
Nederland

NETHERLANDS
telephone: 020 566 8000

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org