Community

The World Federation of CdLS Support



The World Federation of National CdLS Support Organizations (CDLS World) is a not for profit voluntary HUB of world-wide organisations and communities united by Cornelia de Lange syndrome with one common mission to reach out, provide help and give hope.

mission

Our mission

"We are determined to contribute to an early and accurate diagnosis of the Cornelia de Lange syndrome (CdLS), to support research into aspects of the syndrome, to help people with CdLS and to parents, brothers and sisters, grandparents, families help carers and doctors to make decisions based on good information. ""

Calendar of our events

The International Federation of National CdLS Support Organizations (CDLS World)

The World Federation of National CdLS Support Organizations (CDLS World) is a not for profit voluntary HUB of world-wide organisations and communities united by Cornelia de Lange syndrome with one common mission to reach out, provide help and give hope.
Supports multiple communities
Supports
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Contact information

Contact person: David Axtell
PO Box 8368
Ripley
Derbyshire
DE5 4DA
United Kingdom

Read more about our community...

Our Volunteers and Supporters...

Latin America Liaison

Paola הודיה Mannucci הראל

Council member

Gerritjan Koekkoek

Treasurer

Clare Crawford

Volunteer Spanish-speaking Communities

Andrea Morales

Chairman

David Axtell

Chair of the Care Council

Bernadette Dalingwater

Get connected

Follow these steps...

Otherwise contact your national centre of expertise

Network of experts for The World Federation of CdLS Support

Our vision

The dream for our community

With the Cornelia de Lange World federation we have a dream. To share our dream with you in order to convince you to join us we made this video to show you what seeing, talking, learning and sharing is about.