Społeczność

The World Federation of CdLS Support



The World Federation of National CdLS Support Organizations (CDLS World) is a not for profit voluntary HUB of world-wide organisations and communities united by Cornelia de Lange syndrome with one common mission to reach out, provide help and give hope.

mission

Our mission

"We are determined to contribute to an early and accurate diagnosis of the Cornelia de Lange syndrome (CdLS), to support research into aspects of the syndrome, to help people with CdLS and to parents, brothers and sisters, grandparents, families help carers and doctors to make decisions based on good information. ""

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The International Federation of National CdLS Support Organizations (CDLS World)

The World Federation of National CdLS Support Organizations (CDLS World) is a not for profit voluntary HUB of world-wide organisations and communities united by Cornelia de Lange syndrome with one common mission to reach out, provide help and give hope.
Wspiera wiele społeczności
Wspiera
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Informacje kontaktowe

Contact person: David Axtell
PO Box 8368
Ripley
Derbyshire
DE5 4DA
United Kingdom

Dowiedz się więcej o naszej społeczności...

Nasi Wolontariusze i Sympatycy...

Latin America Liaison

Paola Mannucci

Council member

Gerritjan Koekkoek

Treasurer

Clare Crawford

Volunteer Spanish-speaking Communities

Andrea Morales

Executive Council Member (Next Host)

Joana Mendivelso

Chairman

David Axtell

Chair of the Care Council

Bernadette Dalingwater

Połącz się

Wykonaj poniższe kroki...
W przeciwnym razie skontaktuj się z krajowym centrum eksperckim

Sieć ekspertów ds. The World Federation of CdLS Support


Nasze społeczności

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Dansk

Cornelia de Lange foreningen

danianorwegiaszwecjafinlandia
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English

CdLS Foundation UK and Ireland

zjednoczone królestwoirlandia
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

hiszpania
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

izrael
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

niemcyaustriaszwajcaria
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Português

Associação Brasileira Síndrome Cornélia de Lange

brazylia
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

włochy
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portugalia
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Nederlands

Vereniging Cornelia de Lange syndroom

niderlandybelgia
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Français

ASSOCIATION FRANCAISE DU SYNDROME DE CORNELIA DE LANGE

francjaszwajcariabelgiaalgieria
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

polska
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

stany zjednoczone
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

australianowa zelandiamalajsiafilipinysingapur
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Español

Fundación CdLS COLOMBIA

kolumbia

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org