Społeczność

CdLS World federation


The International Federation of National CdLS Support Organizations (CDLS World) is a not for profit voluntary HUB of world-wide organisations and communities united by Cornelia de Lange syndrome with one common mission to reach out, provide help and give hope.

mission

Our mission

"We are determined to contribute to an early and accurate diagnosis of the Cornelia de Lange syndrome (CdLS), to support research into aspects of the syndrome, to help people with CdLS and to parents, brothers and sisters, grandparents, families help carers and doctors to make decisions based on good information. ""

Kalendarz naszych wydarzeń   

The International Federation of National CdLS Support Organizations (CDLS World)

The International Federation of National CdLS Support Organizations (CDLS World) is a not for profit voluntary HUB of world-wide organisations and communities united by Cornelia de Lange syndrome with one common mission to reach out, provide help and give hope.
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Council member

Gerritjan Koekkoek

Executive Council Member (Next Host)

Joana Mendivelso

Chair of the Care Council

Bernadette Dalingwater

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Nasze społeczności

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Dansk

Cornelia de Lange foreningen

danianorwegiaszwecjafinlandia
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English

CdLS Foundation UK & Ireland

zjednoczone królestwoirlandia
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

hiszpania
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

izrael
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

niemcyaustriaszwajcaria
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Español

Asociación Argentina del Sindrome Cornelia de Lange

argentyna
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Português

Associação Brasileira Síndrome Cornélia de Lange

brazylia
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

włochy
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portugalia
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Nederlands

Vereniging Cornelia de Lange syndroom

niderlandybelgia
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Français

ASSOCIATION FRANCAISE DU SYNDROME DE CORNELIA DE LANGE

francjaszwajcariabelgiaalgieria
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

polska
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

stany zjednoczone
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

australianowa zelandiamalajsiafilipinysingapur
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Español

Fundación CdLS COLOMBIA

kolumbia