Comunidad

CdLS World federation


The International Federation of National CdLS Support Organizations (CDLS World) is a not for profit voluntary HUB of world-wide organisations and communities united by Cornelia de Lange syndrome with one common mission to reach out, provide help and give hope.

mission

Our mission

"We are determined to contribute to an early and accurate diagnosis of the Cornelia de Lange syndrome (CdLS), to support research into aspects of the syndrome, to help people with CdLS and to parents, brothers and sisters, grandparents, families help carers and doctors to make decisions based on good information. ""

Calendario de nuestros eventos   

The International Federation of National CdLS Support Organizations (CDLS World)

The International Federation of National CdLS Support Organizations (CDLS World) is a not for profit voluntary HUB of world-wide organisations and communities united by Cornelia de Lange syndrome with one common mission to reach out, provide help and give hope.
Apoya a múltiples comunidades
Apoya
un

Información de contacto

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Nuestros voluntarios y simpatizantes ...

Council member

Gerritjan Koekkoek

Executive Council Member (Next Host)

Joana Mendivelso

Chair of the Care Council

Bernadette Dalingwater

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De lo contrario, póngase en contacto con su centro nacional de especialización

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Nuestras comunidades

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Dansk

Cornelia de Lange foreningen

dinamarcanoruegasueciafinlandia
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English

CdLS Foundation UK & Ireland

reino unidoirlanda
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

españa
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

israel
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

alemaniaaustriasuiza
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Español

Asociación Argentina del Sindrome Cornelia de Lange

argentina
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Português

Associação Brasileira Síndrome Cornélia de Lange

brasil
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

italia
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portugal
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Nederlands

Vereniging Cornelia de Lange syndroom

países bajosbélgica
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Français

ASSOCIATION FRANCAISE DU SYNDROME DE CORNELIA DE LANGE

franciasuizabélgicaalgeria
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

polonia
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

estados unidos
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

australianueva zelandamalasiafilipinassingapur
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Español

Fundación CdLS COLOMBIA

colombia