קהילה

CdLS World federation


The International Federation of National CdLS Support Organizations (CDLS World) is a not for profit voluntary HUB of world-wide organisations and communities united by Cornelia de Lange syndrome with one common mission to reach out, provide help and give hope.

mission

Our mission

"We are determined to contribute to an early and accurate diagnosis of the Cornelia de Lange syndrome (CdLS), to support research into aspects of the syndrome, to help people with CdLS and to parents, brothers and sisters, grandparents, families help carers and doctors to make decisions based on good information. ""

לוח האירועים שלנו   

The International Federation of National CdLS Support Organizations (CDLS World)

The International Federation of National CdLS Support Organizations (CDLS World) is a not for profit voluntary HUB of world-wide organisations and communities united by Cornelia de Lange syndrome with one common mission to reach out, provide help and give hope.
Supports multiple communities
Supports
un

Read more about our community...

המתנדבים והתומכים שלנו...

Council member

Gerritjan Koekkoek

Executive Council Member (Next Host)

Joana Mendivelso

Chair of the Care Council

Bernadette Dalingwater

להתחבר

בצע את השלבים הבאים...
אחרת פנה למרכז המומחיות הלאומי שלך

WaihonaCode.supportGroup.topic.support CdLS World federation


הקהילות שלנו

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Dansk

Cornelia de Lange foreningen

דנמרקנורווגיהשוודיהפינלנד
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English

CdLS Foundation UK & Ireland

הממלכה המאוחדתאירלנד
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

ספרד
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

ישראל
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

גרמניהאוסטריהשוויץ
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Español

Asociación Argentina del Sindrome Cornelia de Lange

ארגנטינה
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Português

Associação Brasileira Síndrome Cornélia de Lange

ברזיל
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

איטליה
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

פורטוגל
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Nederlands

Vereniging Cornelia de Lange syndroom

הולנדבלגיה
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Français

ASSOCIATION FRANCAISE DU SYNDROME DE CORNELIA DE LANGE

צרפתשוויץבלגיהאלג'יריה
{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Français, headerIconURL=, headerTitle=ASSOCIATION FRANCAISE DU SYNDROME DE CORNELIA DE LANGE, showHeaderStatus=true, tileStatus=[]}
Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

פלין
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

ארצות הברית
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

אוסטרליהניו זילנדמלזיההפיליפיניםסינגפור
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Español

Fundación CdLS COLOMBIA

קולומביה