Calendar of Events


Participate when it suits you

We have several participation options that are always open, pick your own time to study or help.

Self study

Emergency care card Cornelia de Lange syndrome



Translate the guidelines Cornelia de Lange syndrome



Whether you're looking for the next family gathering, a online workshop, or just want to see what's going on the world of a rare condition, the calendar of events has all the what, when and where you need.

Below you will see events about a rare condition hosted anywhere in the world.

Currently there are these events!

Join our coming events!

There are no events organized

We have organized these events and they are finished!