the Cornelia de Lange Syndrome (CdLS) Foundation USA
Since 1981, the CdLS Foundation has opened its doors to individuals with CdLS and their family members.
Each year the community grows by the hundreds as research, treatment and understanding of CdLS advance. Since its inception, the Foundation has been working to fulfill its slogan of reaching out, providing help and giving hope to anyone touched by this little-known genetic syndrome or other isolating conditions. Much has been achieved since the first Family Gathering, but there is more to do.
The Foundation’s mission
The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.
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the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
Meet the Team
The CdLS Foundation employs a professional staff, who are available to provide support and information, and help with fundraising events and awareness activities.
Participates in the The World Federation of CdLS Support
Supports
Read more about our community...
Our Volunteers and Supporters...
Executive Director
Network of experts for the Cornelia de Lange Syndrome (CdLS) Foundation USA
Harvey Institute of Human Genetics, Greater Baltimore Medical Centre, Baltimore
International Scientific Advisory Council (SAC)
Department of Anatomy and Neurobiology of the Neuroscience at UC Irvine
Children's Hospital of Philadelphia
CdLS Foundation USA, Our Staff
