the Cornelia de Lange Syndrome (CdLS) Foundation USA
Since 1981, the CdLS Foundation has opened its doors to individuals with CdLS and their family members.
Each year the community grows by the hundreds as research, treatment and understanding of CdLS advance. Since its inception, the Foundation has been working to fulfill its slogan of reaching out, providing help and giving hope to anyone touched by this little-known genetic syndrome or other isolating conditions. Much has been achieved since the first Family Gathering, but there is more to do.
The Foundation’s mission
The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
Meet the Team
The CdLS Foundation employs a professional staff, who are available to provide support and information, and help with fundraising events and awareness activities.
Participates in the The World Federation of CdLS Support
Supports
Read more about our community...
Our Volunteers and Supporters...
Executive Director
Bonnie Royster
Network of experts for the Cornelia de Lange Syndrome (CdLS) Foundation USA
Network of expertise the Cornelia de Lange Syndrome (CdLS) Foundation USA
Our communities
Cornelia de Lange foreningen
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CdLS Foundation UK and Ireland
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Asociación Española Síndrome de Cornelia de Lange (AESCdL)
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(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה
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Arbeitskreis Cornelia de Lange Syndrom e.V.
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Associação Brasileira Síndrome Cornélia de Lange
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Ass. Naz. di Volontariato Cornelia De Lange ONLUS
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Rarissimas - Associação Nacional de Deficiências Mentais e Raras
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Vereniging Cornelia de Lange syndroom
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ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE
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Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce
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the Cornelia de Lange Syndrome (CdLS) Foundation USA
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The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)
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Fundación CdLS COLOMBIA
