Planning of Care


For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange syndrome. 

People with CdLS require life long planning of Care

More detailed sections on Cornelia de Lange syndrome

We organize our answers about Cornelia de Lange syndrome in topics. You can browse our topics below. Below each topic you might find more detailed topics with answers that might be of interest to you.

Medische zorg

Conclusions

Transition

Decision-making

Legal Disclaimer:  Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.

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All of the information contained within these questions and answers is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know, contact see below.

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