What medical care may a child with CdLS need?

What medical care may a child with CdLS need?



For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange syndrome. 

There are a number of area's where medical care can be needed in CdLS, depending the severity and environmental circumstances.


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R10: Every infant and young child with CdLS should be assessed for cardiac (heart) and renal (kidney) malformations subsequent to diagnosis.

R19: Regular follow-up of every child with CdLS is needed, preferably by a paediatrician or clinical geneticist experienced in treating individuals with CdLS; schedules depend on local practices and possibilities.

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