Expertise network


Welcome to the expertise network for Cornelia de Lange syndroom. Because Cornelia de Lange syndroom is a very complicated disorder, families around Cornelia de Lange syndroom have searched and found centre's of expertise together with the formally recognized expertise centre. This network can help your local doctors, day-care centre's, schools and therapeutists to deliver the right care, close to home.

Our information as basis

The experts within this Cornelia de Lange syndroom network work together to provide the best possible information about Cornelia de Lange syndroom on this website. They are also motivated to read your stories and answer your questions to learn more about Cornelia de Lange syndroom. This website is therefore a tool for healthcare provider, healthcare insurer and your family.

Het Cornelia de Lange syndroom (CdLS) is een zeldzame genetische aandoening. Veel mensen hebben er nooit eerder van gehoord. Het zorgt voor verschillende lichamelijke, cognitieve en medische uitdagingen. Al zijn geen twee kinderen met deze aandoening hetzelfde, er is wel veel overeenkomst in de uiterlijke kenmerken en het gedrag.
Ons internationaal panel van deskundigen heeft een uitgebreide gids voor de diagnose en de zorg (verzorging) van CdLS samengesteld.

 


21
                     

Team

UNITED KINGDOM
UNITED KINGDOM
UNITED KINGDOM
Anxiety, mental health Behavioural Psychology

Dr. Hayley Crawford

UNITED KINGDOM
UNITED KINGDOM
UNITED KINGDOM
Autism, autistic traits Behavioural Psychology

Dr. Jo Moss

UNITED KINGDOM
UNITED KINGDOM
UNITED KINGDOM
Sleep expertise Behavioural Psychology

Dr. Caroline Richards

UNITED KINGDOM
UNITED KINGDOM
UNITED KINGDOM
Anxiety, Mental health Behavioural Psychology

Dr. Jane Waite

UNITED KINGDOM
UNITED KINGDOM
UNITED KINGDOM
School of Psychology, Doctoral Researcher

BSc Laura Groves

NETHERLANDS
NETHERLANDS
NETHERLANDS
orthopedagoog Behavioural Psychology

Dr. Paul Mulder

NETHERLANDS
NETHERLANDS
NETHERLANDS
Psychiater Psychiatry Onderzoeker Psychiatrie

Dr. Inge van Balkom

ITALY
ITALY
ITALY
MD, Director of Pediatric Unit Paediatrics & Genetics

Dr. Angelo Selicorni

GERMANY
GERMANY
GERMANY
Molekulare Genetik (MD) Molecular Genetics

Prof. Dr. Frank Kaiser

NETHERLANDS
NETHERLANDS
NETHERLANDS
Developmental and Genetic Pediatrician and clinician-scientist Developmental and Genetic Paediatrics

MD PhD. Leonie Menke

NETHERLANDS
NETHERLANDS
NETHERLANDS
MD PhD (MD) Physician for ID, SIB & CdLS AVG Arts en Opleider

Dr. Sylvia huisman

NETHERLANDS
NETHERLANDS
NETHERLANDS
Klinisch Geneticus

Drs. Saskia Maas

SWITZERLAND
SWITZERLAND
SWITZERLAND
Genetics (MD) Genetics

Dr. Armand Bottani

SPAIN
SPAIN
SPAIN
Pediatra - Genética Clínica (MD) Pediatrician - Clinical Genetics

Dr. Feliciano Ramos

UNITED KINGDOM
UNITED KINGDOM
UNITED KINGDOM
Professor of Paediatric Genetics Clinical Genetics

Dr. David FitzPatrick

UNITED STATES
UNITED STATES
UNITED STATES
MD, Director of Pediatric Genetics, Harvey Institute for Human Genetics, Medical Director Medical Director

M.D. Tonie Kline

UNITED STATES
UNITED STATES
UNITED STATES
Clinical Genetics MD PhD, Associate Medical Director, Roberts Individualized Medical Genetics Center

M.D, Ph.D. Matt Deardorff

POLAND
POLAND
POLAND
Paediatrics Pediatria

Prof. Dr. Jolanta Wierzba

UNITED KINGDOM
UNITED KINGDOM
UNITED KINGDOM
(MD) Gastroenterology Gastroenterology

Dr. Peter Gillett

BRAZIL
BRAZIL
BRAZIL
(MD) General Practitioner in Brazil

Dr. Andréa Scaletzky

GERMANY
GERMANY
GERMANY
Psychiatry Psychiatrie

Prof. Dr. Peter Martin

GERMANY
GERMANY
GERMANY
Genetics

Prof. Dr. Gabriele Gillessen-Kaesbach

ITALY
ITALY
ITALY
Genetic Counselling

Dr.ssa Anna Cereda

FRANCE
FRANCE
FRANCE
Clinical Genetics

Valerie Cormier-Daire

NETHERLANDS
NETHERLANDS
NETHERLANDS
Molecular Genetics Research

PHD. Kerstin Wendt

UNITED STATES
UNITED STATES
UNITED STATES
Education

N.C.S.P Mary Levis

UNITED STATES
UNITED STATES
UNITED STATES
Behavioural Psychology

Ph.D Julia OConnor

UNITED STATES
UNITED STATES
UNITED STATES
Dentistry

D.M.D. Douglas Clemens

DENMARK
DENMARK
DENMARK
Paediatrics Pædiatrik

Dr. Anne-Marie Bisgaard

NETHERLANDS
NETHERLANDS
NETHERLANDS
Inclusive and Special Needs Education and Communication Inclusive and special needs education Inclusive and special needs education, Communication

PhD Saskia Damen

ARGENTINA
ARGENTINA
ARGENTINA
(MD) Genetics

Dra. Ana Laura Quaglio

ARGENTINA
ARGENTINA
ARGENTINA
Paediatrics & Genetics

Dr. Florencia Pabletich

UNITED KINGDOM
UNITED KINGDOM
UNITED KINGDOM
Behavioural Psychology Behavioural Psychology

Prof. Chris Oliver

ARGENTINA
ARGENTINA
ARGENTINA
Orthopaedics

Doctor Elias A. Escobedo Paz

UNITED STATES
UNITED STATES
UNITED STATES
Gynecology, Genetics

M.D. Natalie Blagowidow

UNITED STATES
UNITED STATES
UNITED STATES
Child Psychiatry

M.D., M.P.H. Marco Grados

UNITED STATES
UNITED STATES
UNITED STATES
Clinical Genetics

M.D. Ian Krantz

UNITED STATES
UNITED STATES
UNITED STATES
CCC-SLP, Speech, Language and Feeding

Ph.D Cheri Carrico

UNITED STATES
UNITED STATES
UNITED STATES
Pediatric Ophthalmology

M.D. Alex Levin

ITALY
ITALY
ITALY
Neuropsychiatry

Dr.ssa Paola Francesca Ajmone

NETHERLANDS
NETHERLANDS
NETHERLANDS
Full Professor for Special Needs Education

Marleen Janssen

NETHERLANDS
NETHERLANDS
NETHERLANDS
behavioural expert

Eline van Rooij

NETHERLANDS
NETHERLANDS
NETHERLANDS

Anne Schoone

NETHERLANDS
NETHERLANDS
NETHERLANDS
Teacher

Ineke Heijnen

NETHERLANDS
NETHERLANDS
NETHERLANDS
Teacher

Mariell van Heesch

NETHERLANDS
NETHERLANDS
NETHERLANDS
Teacher

Marieke Kapteijns

PORTUGAL
PORTUGAL
PORTUGAL

Joana Santos

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org

Error number 4001 in 4: Error while evaluating velocity template footer.vm