Expertise network

Welcome to the expertise network for Cornelia de Lange syndrome. Because Cornelia de Lange syndrome is a very complicated disorder, families around Cornelia de Lange syndrome have searched and found centre's of expertise together with the formally recognized expertise centre. This network can help your local doctors, day-care centre's, schools and therapeutists to deliver the right care, close to home.

Our information as basis

The experts within this Cornelia de Lange syndrome network work together to provide the best possible information about Cornelia de Lange syndrome on this website. They are also motivated to read your stories and answer your questions to learn more about Cornelia de Lange syndrome. This website is therefore a tool for healthcare provider, healthcare insurer and your family.

Cornelia de Lange syndrome (CdLS) is a rare genetic disorder. Many people have never heard of it. It causes various physical, cognitive and medical challenges. Although no two children with this disorder are the same, there are many similarities in their appearance and behaviour.
Our international panel of experts has compiled a comprehensive guide to the diagnosis and care


Team

Sylvia huisman

Eline van Rooij

Anne Schoone

Ineke Heijnen

Anne-Marie Bisgaard

Paul Mulder

Inge van Balkom

Frank Kaiser

Leonie Menke

Armand Bottani

Feliciano Ramos

David FitzPatrick

Tonie Kline

Chris Oliver

Angelo Selicorni

Matt Deardorff

Jolanta Wierzba

Peter Gillett

Florencia Pabletich

Andréa Scaletzky

Peter Martin

Gabriele Gillessen-Kaesbach

anna cereda

Valerie Cormier-Daire

Kerstin Wendt

Mary Levis

Julia OConnor

Douglas Clemens

Joana Santos

Marleen Janssen

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org