Kommunitetet

the Cornelia de Lange Syndrome (CdLS) Foundation USA


Since 1981, the CdLS Foundation has opened its doors to individuals with CdLS and their family members.

Each year the community grows by the hundreds as research, treatment and understanding of CdLS advance. Since its inception, the Foundation has been working to fulfill its slogan of reaching out, providing help and giving hope to anyone touched by this little-known genetic syndrome or other isolating conditions. Much has been achieved since the first Family Gathering, but there is more to do.

The Foundation’s mission

The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.

Begivenhedskalender    

Meet the Team

The CdLS Foundation employs a professional staff, who are available to provide support and information, and help with fundraising events and awareness activities.
Støtter
us

Kontaktoplysninger

Patrick Lyons

President

Bonnie Royster

Executive Director

302 West Main Street
Avon, Connecticut 06001
United States

Phone: +1 860-676-8166
Fax: +1 860-676-8337

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Vores kommunitet

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Dansk

Cornelia de Lange foreningen

danmarknorgesverigefinland
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English

CdLS Foundation UK & Ireland

det forenede kongerigeirland
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

spanien
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

tysklandøstrigschweiz
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Español

Asociación Argentina del Sindrome Cornelia de Lange

argentina
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Português

Associação Brasileira Síndrome Cornélia de Lange

brasilien
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

italien
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portugal
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Nederlands

Vereniging Cornelia de Lange syndroom

nederlandenebelgium
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Français

ASSOCIATION FRANCAISE DU SYNDROME DE CORNELIA DE LANGE

frankrigschweizbelgiumalgeriet
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

polen
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

forenede stater
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

australiennye zealandmalaysiaphilippinernesingapore
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Español

Fundación CdLS COLOMBIA

colombia

Om indholdet af hjemmesiden

Alle oplysninger på dette websted er udelukkende til undervisningsformål. Det er din læge, der er det rette sted at få specifik medicinsk rådgivning, diagnoser og behandling. Brug af dette websted sker udelukkende på eget ansvar. Hvis du finder noget, som du mener, der skal rettes eller præciseres, bedes du give os besked på: 

Send en e-mail: info@cdlsWorld.org