the Cornelia de Lange Syndrome (CdLS) Foundation USA
Since 1981, the CdLS Foundation has opened its doors to individuals with CdLS and their family members.
Each year the community grows by the hundreds as research, treatment and understanding of CdLS advance. Since its inception, the Foundation has been working to fulfill its slogan of reaching out, providing help and giving hope to anyone touched by this little-known genetic syndrome or other isolating conditions. Much has been achieved since the first Family Gathering, but there is more to do.
The Foundation’s mission
The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.
Meet the Team
The CdLS Foundation employs a professional staff, who are available to provide support and information, and help with fundraising events and awareness activities.
Participe à la campagne The World Federation of CdLS Support
Soutiens
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Nos Volontaires et Supporters
Executive Director