the Cornelia de Lange Syndrome (CdLS) Foundation USA
Since 1981, the CdLS Foundation has opened its doors to individuals with CdLS and their family members.
Each year the community grows by the hundreds as research, treatment and understanding of CdLS advance. Since its inception, the Foundation has been working to fulfill its slogan of reaching out, providing help and giving hope to anyone touched by this little-known genetic syndrome or other isolating conditions. Much has been achieved since the first Family Gathering, but there is more to do.
The Foundation’s mission
The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.
Kalender unserer Veranstaltungen
Meet the Team
Lesen Sie mehr über unsere Gemeinschaft...
Unsere Freiwilligen und Unterstützer
Bonnie Royster
Netzwerk von Experten für the Cornelia de Lange Syndrome (CdLS) Foundation USA
Expertennetzwerke the Cornelia de Lange Syndrome (CdLS) Foundation USA
Zusammenarbeit hilft....
Die Zusammenarbeit mit anderen Familiengemeinschaften bietet gemeinsames Wissen, eine starke Interessenvertretung, gebündelte Ressourcen und einen beschleunigten Forschungsfortschritt. Gemeinsam können diese Kooperationen den Einzelnen stärken, seine Stimme erheben, Behandlungen vorantreiben und das Bewusstsein schärfen und so letztlich positive Veränderungen bewirken.
Hier finden Sie unsere aktuellen Partner
Cornelia de Lange foreningen
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CdLS Foundation UK and Ireland
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Asociación Española Síndrome de Cornelia de Lange (AESCdL)
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Canadian CdLS Foundation
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(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה
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Arbeitskreis Cornelia de Lange Syndrom e.V.
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Comunidad Argentina del Sindrome Cornelia de Lange
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Associação Brasileira Síndrome Cornélia de Lange
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Ass. Naz. di Volontariato Cornelia De Lange ONLUS
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Rarissimas - Associação Nacional de Deficiências Mentais e Raras
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Vereniging Cornelia de Lange syndroom
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ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE
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Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce
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the Cornelia de Lange Syndrome (CdLS) Foundation USA
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The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)
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Fundación CdLS COLOMBIA
