Comunità

the Cornelia de Lange Syndrome (CdLS) Foundation USA



Since 1981, the CdLS Foundation has opened its doors to individuals with CdLS and their family members.

Each year the community grows by the hundreds as research, treatment and understanding of CdLS advance. Since its inception, the Foundation has been working to fulfill its slogan of reaching out, providing help and giving hope to anyone touched by this little-known genetic syndrome or other isolating conditions. Much has been achieved since the first Family Gathering, but there is more to do.

The Foundation’s mission

The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.

Calendario dei nostri eventi   

Meet the Team

The CdLS Foundation employs a professional staff, who are available to provide support and information, and help with fundraising events and awareness activities.
Sostiene
us

Informazioni di contatto

Patrick Lyons

President

Bonnie Royster

Executive Director

302 West Main Street
Avon, Connecticut 06001
United States

Phone: +1 860-676-8166
Fax: +1 860-676-8337

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Information to world public

Gerritjan Koekkoek

Connettiti

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Le nostre comunità

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Dansk

Cornelia de Lange foreningen

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English

CdLS Foundation UK and Ireland

regno unitoirlanda
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

spagna
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

israele
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

germaniaaustriasvizzera
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Português

Associação Brasileira Síndrome Cornélia de Lange

brasile
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

italia
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portogallo
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Nederlands

Vereniging Cornelia de Lange syndroom

paesi bassibelgio
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Français

ASSOCIATION FRANCAISE DU SYNDROME DE CORNELIA DE LANGE

franciasvizzerabelgioalgeria
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

polonia
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

stati uniti
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

australianuova zelandamalaysiafilippinesingapore
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Español

Fundación CdLS COLOMBIA

colombia

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org