Comunidade

the Cornelia de Lange Syndrome (CdLS) Foundation USA



Since 1981, the CdLS Foundation has opened its doors to individuals with CdLS and their family members.

Each year the community grows by the hundreds as research, treatment and understanding of CdLS advance. Since its inception, the Foundation has been working to fulfill its slogan of reaching out, providing help and giving hope to anyone touched by this little-known genetic syndrome or other isolating conditions. Much has been achieved since the first Family Gathering, but there is more to do.

The Foundation’s mission

The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.

Calendário dos nossos eventos   

Meet the Team

The CdLS Foundation employs a professional staff, who are available to provide support and information, and help with fundraising events and awareness activities.

Informação de contacto

Patrick Lyons

President

Bonnie Royster

Executive Director

302 West Main Street
Avon, Connecticut 06001
United States

Phone: +1 860-676-8166
Fax: +1 860-676-8337

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Os nossos Voluntários e Apoiantes...

Information to world public

Gerritjan Koekkoek

Liga-te

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Caso contrário, contacte o seu centro nacional de especialização


As nossas comunidades

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Dansk

Cornelia de Lange foreningen

dinamarcanoruegasuéciafinlândia
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English

CdLS Foundation UK and Ireland

reino unidoirlanda
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

espanha
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

israel
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

alemanhaáustriasuíça
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Português

Associação Brasileira Síndrome Cornélia de Lange

brasil
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

itália
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portugal
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Nederlands

Vereniging Cornelia de Lange syndroom

países baixosbélgica
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Français

ASSOCIATION FRANCAISE DU SYNDROME DE CORNELIA DE LANGE

françasuíçabélgicaalgéria
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

polónia
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

estados unidos
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

austrálianova zelândiamalaysiafilipinassingapura
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Español

Fundación CdLS COLOMBIA

colômbia

Sobre o conteúdo do sítio web

Toda a informação contida neste WebSite é apenas para fins educativos. O local para obter aconselhamento médico específico, diagnósticos e tratamento é o seu médico. A utilização deste site é estritamente por sua conta e risco. Se encontrar algo que considere necessário corrigir ou esclarecer, por favor informe-nos em: 

Envie um e-mail: info@cdlsWorld.org