Społeczność

the Cornelia de Lange Syndrome (CdLS) Foundation USA



Since 1981, the CdLS Foundation has opened its doors to individuals with CdLS and their family members.

Each year the community grows by the hundreds as research, treatment and understanding of CdLS advance. Since its inception, the Foundation has been working to fulfill its slogan of reaching out, providing help and giving hope to anyone touched by this little-known genetic syndrome or other isolating conditions. Much has been achieved since the first Family Gathering, but there is more to do.

The Foundation’s mission

The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.

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Meet the Team

The CdLS Foundation employs a professional staff, who are available to provide support and information, and help with fundraising events and awareness activities.
Uczestniczy w programie The World Federation of CdLS Support
Wspiera
us

Informacje kontaktowe

Patrick Lyons

President

Bonnie Royster

Executive Director

302 West Main Street
Avon, Connecticut 06001
United States

Phone: +1 860-676-8166
Fax: +1 860-676-8337

Dowiedz się więcej o naszej społeczności...

Nasi Wolontariusze i Sympatycy...

Information to world public

Gerritjan Koekkoek

Połącz się

Wykonaj poniższe kroki...
W przeciwnym razie skontaktuj się z krajowym centrum eksperckim


Nasze społeczności

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Dansk

Cornelia de Lange foreningen

danianorwegiaszwecjafinlandia
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English

CdLS Foundation UK and Ireland

zjednoczone królestwoirlandia
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

hiszpania
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

izrael
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

niemcyaustriaszwajcaria
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Português

Associação Brasileira Síndrome Cornélia de Lange

brazylia
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

włochy
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portugalia
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Nederlands

Vereniging Cornelia de Lange syndroom

niderlandybelgia
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Français

ASSOCIATION FRANCAISE DU SYNDROME DE CORNELIA DE LANGE

francjaszwajcariabelgiaalgieria
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

polska
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

stany zjednoczone
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

australianowa zelandiamalajsiafilipinysingapur
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Español

Fundación CdLS COLOMBIA

kolumbia

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org