Comunidad

the Cornelia de Lange Syndrome (CdLS) Foundation USA



Since 1981, the CdLS Foundation has opened its doors to individuals with CdLS and their family members.

Each year the community grows by the hundreds as research, treatment and understanding of CdLS advance. Since its inception, the Foundation has been working to fulfill its slogan of reaching out, providing help and giving hope to anyone touched by this little-known genetic syndrome or other isolating conditions. Much has been achieved since the first Family Gathering, but there is more to do.

The Foundation’s mission

The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.

Calendario de nuestros eventos   

Meet the Team

The CdLS Foundation employs a professional staff, who are available to provide support and information, and help with fundraising events and awareness activities.
Apoya
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Información de contacto

Patrick Lyons

President

Bonnie Royster

Executive Director

302 West Main Street
Avon, Connecticut 06001
United States

Phone: +1 860-676-8166
Fax: +1 860-676-8337

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Nuestros voluntarios y colaboradores ...

Information to world public

Gerritjan Koekkoek

Conéctese

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De lo contrario, póngase en contacto con su centro nacional de expertos


Nuestras comunidades

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Dansk

Cornelia de Lange foreningen

dinamarcanoruegasueciafinlandia
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English

CdLS Foundation UK and Ireland

reino unidoirlanda
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

españa
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

israel
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

alemaniaaustriasuiza
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Português

Associação Brasileira Síndrome Cornélia de Lange

brasil
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

italia
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portugal
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Nederlands

Vereniging Cornelia de Lange syndroom

países bajosbélgica
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Français

ASSOCIATION FRANCAISE DU SYNDROME DE CORNELIA DE LANGE

franciasuizabélgicaalgeria
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

polonia
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

estados unidos
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

australianueva zelandamalasiafilipinassingapur
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Español

Fundación CdLS COLOMBIA

colombia

Sobre el contenido del sitio web

Toda la información contenida en este sitio web tiene únicamente fines educativos. El lugar para obtener consejos médicos específicos, diagnósticos y tratamientos es su médico. El uso de este sitio es estrictamente bajo su propio riesgo. Si encuentra algo que cree que necesita ser corregido o aclarado, por favor háganoslo saber en: 

Envíe un correo electrónico: info@cdlsWorld.org