Different tile types of WaihonaPedia
waihonapedia.cards
waihonapedia.service.labels
This macro will show a waihonapedia service (Information, Ask the Expert, Experiences, Self-Study) as label
(translated, with or without icon, icon background transparant or not)
{{serviceLabel serviceID='stories' showIcon=false/}}
{{serviceLabel serviceID='information' showIcon=true iconTransparant=true/}}
{{serviceLabel serviceID='data' showIcon=true iconTransparant=false/}}
waihonapedia.cards.home
More about CdLS
Knowing what your child has is important! What is this syndrome? Why do you get it? How can you treat it? We have collected all available information to tell you!
Read...Share your stories and hear those of others
CdLS is a long journey; sometimes difficult and dark but often you arrive at a sunny place. Talking about it helps you cope with the journey.
Read...Meeting others
Somewhere in the world, there are others in the same situation as you. If they connect to us we can help you find them. Maybe you want to meet someone nearby with similar experiences.
Read...Ask our experts
We all have questions on the care and wellbeing of our loved ones with CdLS. Search the questions others have asked before. No question is too big or too small to ask.
Read...waihonapedia.cards.dashboard
waihonapedia.cards.diseases
waihonapedia.cards.services
Under each service (stories, Ask the Expert, Information or Questionaires we try to depict the different topic areas we have published pages about
Cornelia de Lange syndrome (CdLS) is a rare genetic disorder. Many people have never heard of it before. It causes several physical, cognitive and medical challenges. Although no two children with this condition are the same, there are many similarities in the external features and behaviour.
Comprehensive guides
On this website you can browse trough a treasure of information, just roll down on your screen and pick one of the options!
The experts within our community have written a comprehensive guide to support you. (see the link directly below)
waihonapedia.cards.topics
waihonapedia.cards.search.results
We can not show these tiles (cards) in this styleguide, but follow this link (new tab)
waihonapedia.cards.supportgroups
waihonapedia.cards.people
We have a macro {{waihonapediaUserList numberOfUsers="5"/}} zal een lijst van gebruikers tonen
CARLA GUZMAN SILVEIRA
Michael Schultheis
Jenny Rollo
Caroline Connolly
Nathasja Breden
De macro kan ook een titel en een beschrijving van de groep van gebruikers geven:
{{waihonapediaUserList titleOfGroup="Your team of researchers" descriptiveOfGroup="The team of University xxx are all experts on rare diseases" numberOfUsers="5"/}}
Your team of researchers
The team of University xxx are all experts on rare diseases
CARLA GUZMAN SILVEIRA
Michael Schultheis
Jenny Rollo
Caroline Connolly
Nathasja Breden
De macro kan ook gebruikt worden om via een vooraf gemaakte lijst van gebruikers die door comma zijn gescheiden: {{waihonapediaUserList listOfUsers="XWiki.GerritjanKoekkoek,XWiki.DjennaKoekkoek,XWiki.AnneKoekkoek,XWiki.RaoulHennekam" showRole=true showRelation=true/}}
Gerritjan Koekkoek
Djenna Koekkoek
AnneKoekkoek
Raoul Hennekam
waihonapedia.cards.doc.info
waihonapedia.cards.topic-tags
waihonapedia.cards.call-to-action
Collaboration helps....
Collaborating with other family communities offers shared knowledge, advocacy strength, pooled resources, and accelerated research progress. Together, these collaborations empower individuals, amplify voices, advance treatments, and raise awareness, ultimately driving positive change.
See our current partners below
![{showIcon=true, headerCSSIconClass=group-icon, headerIconURL=, serviceLabel=Community, headerTitle=Cornelia de Lange Syndrome, showHeaderStatus=false, tileStatus=[{statusType=entityCount, statusCSSType=entity-count, statusLabel=, statusInformation=, statusClick=false, statusURL=}]}](/xwiki/bin/download/WaihonaPartners/Denmark/WebHome/wp0d26f976_06.png?keepAspectRatio=true&height=100&rev=1.1)
Cornelia de Lange foreningen
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Dansk, headerIconURL=, headerTitle=Cornelia de Lange foreningen, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/UnitedKingdom/WebHome/CdLSFoundationUK%26ISmall_2ColRGB.jpg?keepAspectRatio=true&height=100&rev=1.1)
CdLS Foundation UK and Ireland
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=English, headerIconURL=, headerTitle=CdLS Foundation UK and Ireland, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Spain/WebHome/logoEspana.png?keepAspectRatio=true&height=100&rev=1.1)
Asociación Española Síndrome de Cornelia de Lange (AESCdL)
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Español, headerIconURL=, headerTitle=Asociación Española Síndrome de Cornelia de Lange (AESCdL), showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Canada/WebHome/canada.png?keepAspectRatio=true&height=100&rev=1.1)
Canadian CdLS Foundation
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=English, headerIconURL=, headerTitle=Canadian CdLS Foundation, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/cdlsIsrael/WebHome/logoIsrael2.png?keepAspectRatio=true&height=100&rev=1.3)
(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=עברית, headerIconURL=, headerTitle=(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה , showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Germany/WebHome/LogoDE2.png?keepAspectRatio=true&height=100&rev=1.1)
Arbeitskreis Cornelia de Lange Syndrom e.V.
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Deutsch, headerIconURL=, headerTitle=Arbeitskreis Cornelia de Lange Syndrom e.V. , showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Argentina/WebHome/ArgentinaLogo2.jpg?keepAspectRatio=true&height=100&rev=1.2)
Comunidad Argentina del Sindrome Cornelia de Lange
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Español, headerIconURL=, headerTitle=Comunidad Argentina del Sindrome Cornelia de Lange, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Brazil/WebHome/cdls-fundacao-sindrome-cornelia-de-lange.png?keepAspectRatio=true&height=100&rev=1.1)
Associação Brasileira Síndrome Cornélia de Lange
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Português, headerIconURL=, headerTitle=Associação Brasileira Síndrome Cornélia de Lange, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Italy/WebHome/logo.png?keepAspectRatio=true&height=100&rev=1.1){kind=logo}
Ass. Naz. di Volontariato Cornelia De Lange ONLUS
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Italiano, headerIconURL=, headerTitle=Ass. Naz. di Volontariato Cornelia De Lange ONLUS, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Portugal/WebHome/rarissimas_logo.jpg?keepAspectRatio=true&height=100&rev=1.1){kind=logo}
Rarissimas - Associação Nacional de Deficiências Mentais e Raras
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Português, headerIconURL=, headerTitle=Rarissimas - Associação Nacional de Deficiências Mentais e Raras, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Netherlands/WebHome/cdls-nl-logo.png?keepAspectRatio=true&height=100&rev=1.1){kind=logo}
Vereniging Cornelia de Lange syndroom
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Nederlands, headerIconURL=, headerTitle=Vereniging Cornelia de Lange syndroom, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/France/WebHome/assoclogo.gif?keepAspectRatio=true&height=100&rev=1.1)
ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Français, headerIconURL=, headerTitle=ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Poland/WebHome/plflag.gif?keepAspectRatio=true&height=100&rev=1.1)
Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Polski, headerIconURL=, headerTitle=Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/USA/WebHome/cdls-logo.gif?keepAspectRatio=true&height=100&rev=1.1){kind=logo}
the Cornelia de Lange Syndrome (CdLS) Foundation USA
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=English, headerIconURL=, headerTitle=the Cornelia de Lange Syndrome (CdLS) Foundation USA, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Australia/WebHome/logo.png?keepAspectRatio=true&height=100&rev=1.1){kind=logo}
The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=English, headerIconURL=, headerTitle=The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA), showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Colombia/WebHome/colombia.png?keepAspectRatio=true&height=100&rev=1.1)
Fundación CdLS COLOMBIA
