blocks
Gen-specifieke workshops
| June 21, 2022 | 21/06/2022 | Sprekers en Supporters | ||
|---|---|---|---|---|
| Conversation on HDAC8 | 18:00 | 18:30 | ||
| Conversation on SMC1A | 18:00 | 18:30 | ||
| Conversation on SMC3 | 18:00 | 18:30 | ||
| Conversation on AFF4/BRD4/CTCF | 18:30 | 19:00 | ||
| Conversation on ANKRD11 /TAF1/TAF6 | 18:30 | 19:00 | ||
| Conversation on RAD21/STAG2 | 18:30 | 19:00 | ||
| Create new block starting at 19:00 | ||||
pre-conference workshops
| June 22, 2022 | 22/06/2022 | Sprekers en Supporters | ||
|---|---|---|---|---|
| I Have a Brand New Diagnosis of CdLS - Now What? | 11:00 | 12:00 | ||
| What Do I Do When My Child Finishes High School? | 13:00 | 14:00 | ||
| My Child takes Psychiatric Medications- What should I know? (Wednesday) | 15:00 | 16:00 | ||
| Create new block starting at 16:00 | ||||
| June 23, 2022 | 23/06/2022 | Sprekers en Supporters | ||
|---|---|---|---|---|
| My Child takes Psychiatric Medications- What should I know? | 12:00 | 13:00 | ||
| Continuing Bonds and Your Child’s Legacy | 13:00 | 13:00 | ||
| Create new block starting at 13:00 | ||||
Conference
| June 24, 2022 | 24/06/2022 | Sprekers en Supporters | ||
|---|---|---|---|---|
| Medical Update on CdLS | 11:30 | 12:45 | ||
| Empowering Families: Learning to Navigate the Health Care System in the United States | 12:50 | 13:40 | ||
| Ask a Veteran Parent Panel | 13:40 | 13:40 | ||
| Seven Simple Strategies for Sibling Support | 15:00 | 15:45 | ||
| Ladies' Night Out | 17:00 | 18:00 | ||
| Grandparents Get Together | 18:00 | 19:00 | ||
| Men's Happy Hour | 18:00 | 19:00 | ||
| Create new block starting at 19:00 | ||||
| June 25, 2022 | 25/06/2022 | Sprekers en Supporters | ||
|---|---|---|---|---|
| Update on Research: Gene Therapy | 11:30 | 12:10 | ||
| Urgent and Emergent Gastrointestinal Issues in CdLS | 12:15 | 13:05 | ||
| Maddy's Ice Cream Social | 13:05 | 13:35 | ||
| Identifying and Addressing Behavioral Health Concerns in Individuals with CdLS | 13:40 | 14:35 | ||
| Create new block starting at 14:35 | ||||
