Supported by worldwide experts

To become an expert you need a good education. But you also need to meet people with CdLS. You need to have a certain amount of these encounters to learn about the specifics of a rare disease like CdlS. These experts are as rare as our children.

The CdLS World federation has brought together the experts world wide already in 9 conferences over 20 years. To meet these experts will be great for our families. But also to meet us will be a great experience for these experts to discover more about the syndrome.