International Scientific Advisory Council (SAC)
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We are eager to support and share!
Knowledge and expertise from all over the world taken together in one group. SAC stands for up-to-date information, available to as many people as possible. Experts on variable topics within Cornelia de Lange Syndrome work together to share interdisciplinary knowledge.
Sharing our information we do through publications in (international, peer-reviewd) journals, the CdLS-world website, newsletters of members and associates of the federation and by organizing symposia and congresses together with the CdLS-world federation.
A lot of information on different topics, collected and constructed in collaboration with parents, professionals and other involved persons, is already available on this website.
Go to Ask the Expert, write down your question and we will as soon and good as possible give a response
Team
(MD) General Practitioner in Brazil
Team Comunidad Argentina del Sindrome Cornelia de Lange
(DCC) Médica genetista
Dra. Ana Laura Quaglio
Orthopaedics
Doctor Elias A. Escobedo Paz
Team Arbeitskreis Cornelia de Lange Syndrom e.V.
(MD) Molecular Genetics
Prof. Dr. Frank Kaiser
Psychiatry
Prof. Dr. Peter Martin
Advisor
Postdoctoral Researcher Ilaria Parenti
Team Cornelia de Lange foreningen
Paediatrics
Dr. Anne-Marie Bisgaard
Team Asociación Española Síndrome de Cornelia de Lange (AESCdL)
(MD) Pediatrician - Clinical Genetics
Dr. Feliciano Ramos
Team ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE
(MD) Genetics
Dr. Armand Bottani
Clinical Genetics
Valerie Cormier-Daire
Researcher
Dr Erwan WATRIN
Team CdLS Foundation UK and Ireland
(MD) Gastroenterology
Dr. Peter Gillett
Clinical Genetics
Dr. David FitzPatrick
Behavioural Psychology
Dr. Jo Moss
Behavioural Psychology
Dr. Caroline Richards
Behavioural Psychology
Dr. Jane Waite
Behavioural Psychology
Dr. Hayley Crawford
Behavioural Psychology
Prof. Chris Oliver
Team Ass. Naz. di Volontariato Cornelia De Lange ONLUS
Paediatrics & Genetics
Dr. Angelo Selicorni
Genetic Counselling
Dr.ssa Anna Cereda
Neuropsychiatry
Dr.ssa Paola Francesca Ajmone
Team Vereniging Cornelia de Lange syndroom
(MD) Physician for ID, SIB & CdLS
Dr. Sylvia Huisman
Psychiatry
Dr. Inge van Balkom
Developmental and Genetic Paediatrics
Dr. Leonie Menke
Molecular Genetics Research
PHD. Kerstin Wendt
SAC Member
Prof. Dr. Saskia Damen
Behaviour specialist
Dr. Paul Mulder
Team Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce
Paediatrics
Prof. Dr. Jolanta Wierzba
Team the Cornelia de Lange Syndrome (CdLS) Foundation USA
Medical Director
M.D. Tonie Kline
Clinical Genetics
M.D, Ph.D. Matt Deardorff
Education
N.C.S.P Mary Levis
Behavioural Psychology
Ph.D Julia OConnor
Dentistry
D.M.D. Douglas Clemens
Gynecology, Genetics
M.D. Natalie Blagowidow
Child Psychiatry
M.D., M.P.H. Marco Grados
Clinical Genetics
M.D. Ian Krantz
CCC-SLP, Speech, Language and Feeding
Ph.D Cheri Carrico
Pediatric Ophthalmology
M.D. Alex Levin
Dienstleistungen/Qualifikationen International Scientific Advisory Council (SAC)
| Forschungszentrum | |
|---|---|
| 1 | Forschung, die wichtig ist, um die Ursache, die Störungen und/oder die Emotionen der Störung zu verstehen |
| 2 | verfügt nachweislich über ein umfassendes Wissen über die Erkrankung |
| 3 | Sichert dieses Wissen über die Störung in Zusammenarbeit mit dem Verein und anderen (internationalen) Instituten/Organisationen |
| 4 | Sichert die Finanzierung von störungsrelevanten Bereichen |
| 5 | trägt das Wissen auf nationalen und/oder internationalen Tagungen und Konferenzen sowie Publikationen durch den Verein weiter |
Kontakt
International Scientific Advisory Council (SAC)
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