International Scientific Advisory Council (SAC)

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Goal of International Scientific Advisory Council (SAC)

Obiettivo del International Scientific Advisory Council (SAC)

We are eager to support and share!

Knowledge and expertise from all over the world taken together in one group.  SAC stands for up-to-date information, available to as many people as possible. Experts on variable topics within Cornelia de Lange Syndrome work together to share interdisciplinary knowledge.

Sharing our information we do through publications in (international, peer-reviewd) journals, the CdLS-world website, newsletters of members and associates of the federation and by organizing symposia and congresses together with the CdLS-world federation.

A lot of information on different topics, collected and constructed in collaboration with parents, professionals and other involved persons, is already available on this website.
Can’t you find the right information or doesn’t the information provide the answer to your question(s)?

Go to Ask the Expert, write down your question and we will as soon and good as possible give a response

  

Squadra

General practitioner in Brazil

Andréa Scaletzky

Squadra Asociación Argentina del Sindrome Cornelia de Lange

Paediatrics & Genetics

Florencia Pabletich

Squadra Arbeitskreis Cornelia de Lange Syndrom e.V.

Molecular Genetics

Frank Kaiser

Psychiatry

Peter Martin

Genetics

Gabriele Gillessen-Kaesbach

Squadra Cornelia de Lange foreningen

Paediatrics

Anne-Marie Bisgaard

Squadra Asociación Española Síndrome de Cornelia de Lange (AESCdL)

Paediatrician - Clinical Genetics

Feliciano Ramos

Squadra ASSOCIATION FRANCAISE DU SYNDROME DE CORNELIA DE LANGE

Genetics

Armand Bottani

Clinical Genetics

Valerie Cormier-Daire

Squadra CdLS Foundation UK & Ireland

Behavioural Psychology

Chris Oliver

Gastroenterology

Peter Gillett

Clinical Genetics

David FitzPatrick

Behavioural Psychology

Jo Moss

Behavioural Psychology

Caroline Richards

Behavioural Psychology

Jane Waite

Behavioural Psychology

Hayley Crawford

Squadra Ass. Naz. di Volontariato Cornelia De Lange ONLUS

Paediatrics & Genetics

Angelo Selicorni

Genetic Counselling

Anna Cereda

Squadra Vereniging Cornelia de Lange syndroom

Behavioural Psychology

Paul Mulder

Physician for ID, SIB & CdLS

Sylvia huisman

Psychiatry

Inge van Balkom

Developmental and Genetic Paediatrics

Leonie Menke

Molecular Genetics Research

Kerstin Wendt

Inclusive and Special Needs Education and Communication

Saskia Damen

Squadra Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

Paediatrics

Jolanta Wierzba

Squadra the Cornelia de Lange Syndrome (CdLS) Foundation USA

Medical Director

Tonie Kline

Clinical Genetics

Matt Deardorff

Education

Mary Levis

Behavioural Psychology

Julia OConnor

Dentistry

Douglas Clemens

Servizi/qualifiche International Scientific Advisory Council (SAC)

Competenza e/o centro di trattamento
Centro di ricerca
1Ricerca che è importante per capire la causa, i disturbi e/o le emozioni del disturbo
2Ha una comprovata conoscenza completa del disturbo
3Assicura questa conoscenza del disturbo in modo colloborativo con l'associazione e altri istituti/organizzazioni (internazionali)
4Assicura il finanziamento delle aree rilevanti per il disturbo
5Porta avanti la conoscenza in incontri e conferenze nazionali e/o internazionali e pubblicazioni attraverso l'associazione
Contatto

Contatto

International Scientific Advisory Council (SAC)
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