International Scientific Advisory Council (SAC)

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à la International Scientific Advisory Council (SAC)

Goal of International Scientific Advisory Council (SAC)

Cible du International Scientific Advisory Council (SAC)

We are eager to support and share!

Knowledge and expertise from all over the world taken together in one group.  SAC stands for up-to-date information, available to as many people as possible. Experts on variable topics within Cornelia de Lange Syndrome work together to share interdisciplinary knowledge.

Sharing our information we do through publications in (international, peer-reviewd) journals, the CdLS-world website, newsletters of members and associates of the federation and by organizing symposia and congresses together with the CdLS-world federation.

A lot of information on different topics, collected and constructed in collaboration with parents, professionals and other involved persons, is already available on this website.
Can’t you find the right information or doesn’t the information provide the answer to your question(s)?

Go to Ask the Expert, write down your question and we will as soon and good as possible give a response

  

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General practitioner in Brazil

Andréa Scaletzky

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Paediatrics & Genetics

Florencia Pabletich

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Molecular Genetics

Frank Kaiser

Psychiatry

Peter Martin

Genetics

Gabriele Gillessen-Kaesbach

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Paediatrics

Anne-Marie Bisgaard

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Paediatrician - Clinical Genetics

Feliciano Ramos

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Genetics

Armand Bottani

Clinical Genetics

Valerie Cormier-Daire

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Behavioural Psychology

Chris Oliver

Gastroenterology

Peter Gillett

Clinical Genetics

David FitzPatrick

Behavioural Psychology

Jo Moss

Behavioural Psychology

Caroline Richards

Behavioural Psychology

Jane Waite

Behavioural Psychology

Hayley Crawford

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Paediatrics & Genetics

Angelo Selicorni

Genetic Counselling

Anna Cereda

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Behavioural Psychology

Paul Mulder

Physician for ID, SIB & CdLS

Sylvia huisman

Psychiatry

Inge van Balkom

Developmental and Genetic Paediatrics

Leonie Menke

Molecular Genetics Research

Kerstin Wendt

Inclusive and Special Needs Education and Communication

Saskia Damen

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Paediatrics

Jolanta Wierzba

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Medical Director

Tonie Kline

Clinical Genetics

Matt Deardorff

Education

Mary Levis

Behavioural Psychology

Julia OConnor

Dentistry

Douglas Clemens

Services/qualifications International Scientific Advisory Council (SAC)

Expertise et/ou centre de traitement
Centre de recherche
1Recherche qui est importante pour comprendre la cause, les troubles et/ou les émotions du trouble.
2Possède des connaissances approfondies avérées sur le trouble
3Assure cette connaissance du trouble en collaboration avec l'association et d'autres instituts/organisations (internationales).
4Assure le financement des domaines liés aux troubles
5Transmet ses connaissances lors de réunions et de conférences nationales et/ou internationales et de publications par le biais de l'association.
Contact

Contact

International Scientific Advisory Council (SAC)
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