Juntos
10° Conferencia Mundial Síndrome Cornelia de Lange – 2019Juntos, expertos y familias buscan respuestas, encuentran soluciones y comparten las mejores prácticas. Nuestra comprensión de CdLS se incrementa y las familias están en mejores condiciones para enfrentar los desafíos de criar a sus hijos. Fortalecemos la amistad, en un ambiente emocionalmente seguro. Los padres son apoyados y animados a compartir preocupaciones y celebrar triunfos.
CdLS World federation Scientific Advisory Committee (SAC) meeting
More and more experts in the field of Medical, Cognitive, Care, Family consulting-services have discovered a passion for the rare Cornelia the Lange syndrome.As with the federation members they gather each 2 years to share the latest research and new best practices and take home this knowledge to their respective countries.We have been welcoming more nationalities each year that will improve the dissimilation of knowledge about CdLS to all who need this knowledge. The experts we know will be invited for this meeting. If you developed the same passion for CdLS and expert in a area you deem relevant for CdLS please let us know and the SAC might invite you as well!
