Information

Planning for best quality of life

For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange syndroom.

Through advances in treatment, research and understanding of CdLS, people with CdLS are often living longer and fuller lives than ever before. 

Each person with CdLS is a unique individual who brings to the table a complex array of strengths and challenges, along with their own personality. 

Thus there can never be one program that is best for all people with CdLS. 

The goal of this topic is to provide guiding principles to help prioritize the varied developmental, therapeutic and educational needs of people with CdLS. To ensure wellbeing, meaningfulness of the person with CdlS and the complete family


                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                         

                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                           

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Cornelia de Lange syndroom
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Deepen your knowledge of Cornelia de Lange syndroom

We organize our information about Cornelia de Lange syndroom in topics. You can browse our topics below. Below each topic you might find more detailed topics with information that might be of interest to you.

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All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org