Information

Family Empowerment

For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange syndrome.

Quality of life is, next to provide medical 'health' to people with CdLS, provide care, also dependent on the strength and the happiness of the family members


                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                   

Deepen your knowledge of Cornelia de Lange syndrome

We organize our information about Cornelia de Lange syndrome in topics. You can browse our topics below. Below each topic you might find more detailed topics with information that might be of interest to you.