Age-related changes in cognition and behaviour

For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange syndrome.

Research has suggested that behavioural, emotional and cognitive characteristics in CdLS can change with age.

Findings from one study suggest an association between age and a higher number of behavioural difficulties in individuals with CdLS. In this study, older age was specifically associated with lower levels of interest and pleasure, and greater insistence on sameness. This suggests older individuals with CdLS display more difficulties.


Age-related changes in cognition and behaviour

Individuals with CdLS should receive extra support during adolescence and early adulthood, using a person-centred approach to reduce mental health issues and challenging behaviour.