We are families with CdLS


All of us embarked on a mission after getting the diagnosis of CdLS for our child or brother or sister. We all have found some solution that could work for others as well. We share this knowledge and get together to share our emotions, our troubles but also our victories.

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org