Jenny Rollo

Jenny has been a vocal disability advocate  for over 35 years supporting CdLS families in Australia and nearby countries, taking on government policies to achieve better outcomes for individuals and successfully lobbying governments for disability accommodation within the local community.

She works part-time as Projects Manager at Genetic Alliance Australia. This umbrella support organisation strengthens families with rare genetic conditions living in rural and remote areas of NSW. People whose conditions are so rare there are no recognised groups are also included in the programs.  Backing leaders of condition-specific groups with training and information is a primary focus.