Welcome and Opening

  


Welcome and Opening

Bienvenue et ouverture de la conférence. La conférence est rendue possible par les groupes familiaux allemands et néerlandais. Et la municipalité de Bad Neuenahr-Ahrweiler souhaite la bienvenue à tous les visiteurs et leur exprime son hospitalité.

Meet our experts

We are doing our best to invite those from around the world that can give you the insights you hope for. Both professors, teachers, experienced parents or siblings will discuss the topics for the best quality of life possible. Our motto; TOGETHER!

Gabriele Gillessen-Kaesbach

Gabriele Gillessen-Kaesbach

Jürgen Kegel

Jürgen Kegel

Jürgen is chairman of the German 'Arbeitskreis Cornelia de Lange Syndrom e.V.' 

Gerritjan Koekkoek

Gerritjan Koekkoek

He is father of Rai (CdLS, November 1999). Motivated to know all you need to know about CdLS he joined the dutch 'vereniging Cornelia de Lange syndroom' and became chairman of this group in 2008. In Buenos Aires at the world conference about CdLS in Argentina he was elected chairman of the CdLS World federation. 

Gerritjan is an Information Architect. Within the CdLS World federation executive council he is especially advocating the role of family members and the CdLS Patients so they are involved in Knowledge Development and sharing their experience with other family members, professionals or researchers.

Gerritjan is currently past-chairman in the CdLS World Federation Council executive team and chairman of the dutch 'vereniging cdls' 

About the website contents

All of the information contained within these questions and answers is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know, contact see below.