Feeding and Dental Difficulties
For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange Syndrome.
From infancy to adulthood, feeding difficulties are very common in individuals with CdLS. Preferably, individuals with CdLS should be fed orally (by mouth). However, feeding difficulties may sometimes result in feeding times becoming unsafe, stressful and taking many hours out of the day. In these circumstances, doctors may temporarily supplement an individual’s feeding with a gastrostomy tube.
Recommendation(s)
Feeding and Dental Difficulties
R12
In every CdLS individual with prolonged and marked feeding difficulties, the multidisciplinary assessment (from healthcare workers across many disciplines) should consider (temporary) placement of a gastrostomy (surgical opening through the abdomen into the stomach) as a supplement to oral feeding.
R13
In individuals with CdLS who have recurrent respiratory infections, reflux and/or aspiration (breathing foreign objects into airways) should be ruled out.
R14
The palate should be closely examined at diagnosis. In case of symptoms of a (submucous) cleft palate, referral for specialist assessment is indicated.
R15
Dental assessment and cleaning should take place regularly; a more thorough dental examination or treatment under anaesthesia may be necessary.
.
our Questions and Answers of our experts
Diet for feeding issues with Reflux
Weight Gain
Dental Implants
Nipple Feeding
C. Difficile Treatment
Reflux and Tooth Decay
Mic-key site irritation (Site care, gastrostomy button, yeast infection)
Sensory Integration and Feeding
Dietary considerations for reflux
Teeth Grinding "Bruxism"
Slow Weight Gain
Effects of Tegretol on mouth
Sensory Integration and Feeding
Gastroenterology (Feeding)
Suck/Swallow/Breath - Feeding Issues
Sedation for dental work
Teeth Grinding
Pulling out feeding-tube buttons
Behavior/Diets
Teeth Grinding
Oral feeding and G-tube weaning
Canker Sores
Receding gums (Wisdom teeth, Gingival grafts)
Rice Cereal Allergy
Allergy to Formula
Feeding and Dysphagia
GI - Gas and Prilosec
Brittle Bones
Dental/Grinding/Sliming
Lactose Intolerance (Formula Alternatives, Fat Intake)
Teething
Obesity
Medical Needs at School: Feeding, schools, nursing
Feeding Tubes
Wisdom Teeth-Impacted
Teeth Growth
G-tube and vomiting
Nissen Fundoplication
Introducing Solid Foods
Ketogenic Diet
Anesthesia for dental work
Constipation and G-Tubes
Caloric intake via feeding tube
Missing Teeth
Teeth Exfoliation
G-tube and Formula
Behavior/Dental/Molars
Pulling Eye Teeth
Thinning of the hair
