Behavior, Picking, Pica
Nur in en!
Feeding and Dental Difficulties
Eltern, Betreuer, Gesundheitsdienstleister und Lehrer haben oft Bedenken und Fragen zur Pflege und zum Wohlbefinden von Menschen mit Cornelia-de-Lange-Syndrom.
From infancy to adulthood, feeding difficulties are very common in individuals with CdLS. Preferably, individuals with CdLS should be fed orally (by mouth). However, feeding difficulties may sometimes result in feeding times becoming unsafe, stressful and taking many hours out of the day. In these circumstances, doctors may temporarily supplement an individual’s feeding with a gastrostomy tube.
Empfehlung(en)
Feeding and Dental Difficulties
R12
In every CdLS individual with prolonged and marked feeding difficulties, the multidisciplinary assessment (from healthcare workers across many disciplines) should consider (temporary) placement of a gastrostomy (surgical opening through the abdomen into the stomach) as a supplement to oral feeding.
R13
In individuals with CdLS who have recurrent respiratory infections, reflux and/or aspiration (breathing foreign objects into airways) should be ruled out.
R14
The palate should be closely examined at diagnosis. In case of symptoms of a (submucous) cleft palate, referral for specialist assessment is indicated.
R15
Dental assessment and cleaning should take place regularly; a more thorough dental examination or treatment under anaesthesia may be necessary.
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unsere Fragen und Antworten unserer Experten
Diet for feeding issues with Reflux
Nur in en!
Weight Gain
Nur in en!
Dental Implants
Nur in en!
Nipple Feeding
Nur in en!
C. Difficile Treatment
Nur in en!
Reflux and Tooth Decay
Nur in en!
Mic-key site irritation (Site care, gastrostomy button, yeast infection)
Nur in en!
Sensory Integration and Feeding
Nur in de!
Dietary considerations for reflux
Nur in en!
Teeth Grinding "Bruxism"
Nur in en!
Slow Weight Gain
Nur in en!
Effects of Tegretol on mouth
Nur in en!
Sensory Integration and Feeding
Nur in en!
Gastroenterology (Feeding)
Nur in en!
Suck/Swallow/Breath - Feeding Issues
Nur in en!
Sedation for dental work
Nur in en!
Teeth Grinding
Nur in en!
Pulling out feeding-tube buttons
Nur in en!
Behavior/Diets
Nur in en!
Teeth Grinding
Nur in de!
Oral feeding and G-tube weaning
Nur in en!
Canker Sores
Nur in en!
Receding gums (Wisdom teeth, Gingival grafts)
Nur in en!
Rice Cereal Allergy
Nur in en!
Allergy to Formula
Nur in en!
Feeding and Dysphagia
Nur in en!
GI - Gas and Prilosec
Nur in en!
Brittle Bones
Nur in en!
Dental/Grinding/Sliming
Nur in en!
Lactose Intolerance (Formula Alternatives, Fat Intake)
Nur in en!
Teething
Nur in en!
Obesity
Nur in en!
Medical Needs at School: Feeding, schools, nursing
Nur in en!
Feeding Tubes
Nur in en!
Wisdom Teeth-Impacted
Nur in en!
Teeth Growth
Nur in en!
G-tube and vomiting
Nur in en!
Nissen Fundoplication
Nur in en!
Introducing Solid Foods
Nur in en!
Ketogenic Diet
Nur in en!
Anesthesia for dental work
Nur in en!
Constipation and G-Tubes
Nur in en!
Caloric intake via feeding tube
Nur in en!
Missing Teeth
Nur in en!
Teeth Exfoliation
Nur in en!
G-tube and Formula
Nur in en!
Behavior/Dental/Molars
Nur in en!
Pulling Eye Teeth
Nur in en!
Thinning of the hair
Nur in en!
