Information

Growth in Childhood

For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange syndrome.

Birth weights in CdLS are significantly lower than the average birth weight and children with CdLS are almost always short in stature. Young children tend to have a below average weight when compared to others their age, although obesity can occur in later life. A small head size is also often common in individuals with CdLS. Growth charts are available that are specific to individuals with CdLS.

Recommendation(s)

Growth in Childhood

R11
The growth of every child with CdLS should be monitored by using CdLS-specific growth charts.


                                                                                                                                                                                                                                                                                                                                                                                                                                                                 

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