Information

What medical care may a child with CdLS need?

For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange syndrome.

There are a number of area's where medical care can be needed in CdLS, depending the severity and environmental circumstances.

Recommendation(s)

What medical care may a child with CdLS need?

R10
Every infant and young child with CdLS should be assessed for cardiac (heart) and renal (kidney) malformations subsequent to diagnosis.
R19
Regular follow-up of every child with CdLS is needed, preferably by a paediatrician or clinical geneticist experienced in treating individuals with CdLS; schedules depend on local practices and possibilities.


                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                 

Deepen your knowledge of Cornelia de Lange syndrome

We organize our information about Cornelia de Lange syndrome in topics. You can browse our topics below. Below each topic you might find more detailed topics with information that might be of interest to you.

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