pre-conference workshops


On Wednesday and Thursday, pre-conference workshops are available that address the special needs of specific segments of our CdLS community. 


pre-conference workshops day June 22, 2022

11:00 : 12:00

So, you just learned your child or grandchild has CdLS – Now What? 

Join CdLS veteran parents who will share their lived experience and answer the type of questions you might be afraid to ask of anyone else. What can I expect/hope for my child? What will the school/social experience be like? The CdLS Medical Director will also be present to answer any questions you may have. 

Want to know more – take the discussion offline to the “Discussion Tables”.

Zoom is required to attend this session. Please be sure to have it downloaded, before the event begins. 

Tonie Kline
13:00 : 14:00

This presentation will be uplifting, interactive and educational, as  well as provide a good basic understanding of some important facts.  

Topics of discussion include Transition, Employment, Financial,  Government Benefits, Special Needs Trusts and Guardianship, and building  a lifelong support network.

Zoom is required to attend this session. Please be sure to have it downloaded before the event begins.

15:00 : 16:00

This workshop will review the range of psychotropics used to treat challenging behaviors in children with CdLS. The categories of medication to be discussed include stimulants/alpha agonists for ADHD/hyperarousal states; SSRIs and other antidepressants, antianxiety agents for mood disorders; mood-stabilizers for bipolar disorders and neuroleptics for self-injury, aggression and psychosis. 

Zoom is required to attend this session. Please be sure to have it downloaded, before the event begins. 

Marco Grados

pre-conference workshops day June 23, 2022

12:00 : 13:00

This workshop will review the range of psychotropics used to treat challenging behaviors in children with CdLS. The categories of medication to be discussed include stimulants/alpha agonists for ADHD/hyperarousal states; SSRIs and other antidepressants, antianxiety agents for mood disorders; mood-stabilizers for bipolar disorders and neuroleptics for self-injury, aggression and psychosis. 

Zoom is required to attend this session. Please be sure to have it downloaded, before the event begins.

Marco Grados
13:00 : 13:00

This session is designed to help bereaved parents process and learn to cope with their grief from child loss by: 

  1. giving you a framework for understanding the grief landscape and normalizing the range of emotions; 
  2. learning about Continuing Bond Theory, discussing how we maintain bonds and how they evolve overtime 
  3. hearing from other bereaved parents; 
  4. and introducing CourageousParentsNetwork.org as a source of resources - such as materials for supporting bereaved siblings and extended family and bibliotherapy - to help you find your way and move forward.

Zoom is required to attend this session. Please be sure to have it downloaded, before the event begins.