Gen-specifieke workshops
Doe mee met medische experts en onderzoekers in gen-specifieke workshops om specifieke uitdagingen te bespreken waarmee uw dierbare geconfronteerd kan worden.
Notabene wordt de meer algemene gen afwijking NIPBL hier niet behandeld!
Gen-specifieke workshops
This workshop aims to educate and encourage families with a loved one that was diagnosed with HDAC8 to engage in open dialogue with one another. A genetic counselor and geneticist will open the session with an overview of the basic discoveries and answer questions.
After the workshop, families are encouraged to head to the “Discussion Tables” to continue meeting with one another to share stories, resources, and information.
Zoom is required to attend this session. Please be sure to have it downloaded, before the event begins.
This workshop aims to educate and encourage families with a loved one that was diagnosed with SMC3 to engage in open dialogue with one another. A genetic counselor and geneticist will open the session with an overview of the basic discoveries and answer questions.
After the workshop, families are encouraged to head to the “Discussion Tables” to continue meeting with one another to share stories, resources, and information.
Zoom is required to attend this session. Please be sure to have it downloaded, before the event begins.
This workshop aims to educate and encourage families with a loved one that was diagnosed with SMC1A to engage in open dialogue with one another. A genetic counselor and geneticist will open the session with an overview of the basic discoveries and answer questions.
After the workshop, families are encouraged to head to the “Discussion Tables” to continue meeting with one another to share stories, resources, and information.
Zoom is required to attend this session. Please be sure to have it downloaded, before the event begins.
This workshop aims to educate and encourage families with a loved one that was diagnosed with RAD21/STAG2 to engage in open dialogue with one another. A genetic counselor and geneticist will open the session with an overview of the basic discoveries and answer questions.
After the workshop, families are encouraged to head to the “Discussion Tables” to continue meeting with one another to share stories, resources, and information.
Zoom is required to attend this session. Please be sure to have it downloaded, before the event begins.
This workshop aims to educate and encourage families with a loved one that was diagnosed with AFF4/BRD4/CTCF to engage in open dialogue with one another. A genetic counselor and geneticist will open the session with an overview of the basic discoveries and answer questions.
After the workshop, families are encouraged to head to the “Discussion Tables” to continue meeting with one another to share stories, resources, and information.
Zoom is required to attend this session. Please be sure to have it downloaded, before the event begins.
This workshop aims to educate and encourage families with a loved one that was diagnosed with ANKRD11 /TAF1/TAF6 to engage in open dialogue with one another. A genetic counselor and geneticist will open the session with an overview of the basic discoveries and answer questions.
After the workshop, families are encouraged to head to the “Discussion Tables” to continue meeting with one another to share stories, resources, and information.
Zoom is required to attend this session. Please be sure to have it downloaded, before the event begins.
