Founder & CEO
Jenni is Founder & CEO for Canadian CdLS Foundation
- Representing
- Description of role
Jenni is the founder and CEO, with over 20 years of healthcare experience in the clinical, education, leadership and governance roles in acute care, public health and education sectors. She is also the mother of a child with CdLS. Through this experience she has realized the challenges of those with rare diseases in Canada in terms of access to healthcare and education and the demands placed on those who care, educate and support individuals with CdLS