Registration instructions
Why should I register on CdLS World?
CdLS is a very rare syndrome. You will find it difficult to find answers to questions about CdLS. When you know people, that have experiences like you, it is of enormous value to meet these people. You can do this by both visiting each other, organize a meeting or over the internet.
For all these things you need to make yourself known to the others. You can do this each time there is a need or publish your information on a website like this one.
Second, many of the federation members receive funds related to the number of people they represent. If it is through donations, public funding or membership-fee; the money is needed for;
- organize meetings
- organize research
- organize websites or other information sources
The goal of CdLS World is to become a CdLS information source on top of things like Facebook, Ning,...;
The number of people that show: "I'm speaking up for CdLS" will directly or indirectly make sure that CdLS is recognized in time, that it is givven the attention it deserves and that people will find each other and support each other.
Registration is Free of charge!
If you register with us, it is free of charge. The idea is that we grow a group of people connected by CdLS that will share expertise. So we only ask for information about you and the person(s) with CdLS that make you care about CdLS.
We need to ensure that the information on CdLS World is of High Quality. This is why we review each others information. Registration ensures that we know who is writing what! This protects the information from being 'Attacked' by anonymous people.
Connect to one of the CdLS world support groups
When you register with this website you can choose a association (if there is one in your country). This association will send you a welcome message. They will inform you about what they do specifically for you, what membership conditions they have. You can be asked for a paid membership, you can choose if you would like that. If you want to stay free of charge it is OK. It does not have any impact on what you can do on CdLS World, it could mean you can not use all services of the support group .
