Information

Adolescence

Adolescence (puberty – 20 years)

An individual with CdLS should have regular care through the primary care provider and:

  • Ongoing developmental services. School placement and therapy issues should be individualized. Plans should be initiated early for school or workplace placement after high school, job training and/or higher education;
  • For females, consider pelvic examination with Pap smear regularly, at least every three years, depending on sexual activity, from late adolescence throughout adulthood. Discuss hormonal therapy with patient and family, both from the pregnancy prevention point of view, and management of menstruation (individualized to specific patient and family);
  • Discuss recurrence risks if developmentally appropriate;
  • See 3.a‐c. above
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