05 - Views and Preferences of the families are included
The views and preferences of the target population (patients, public, etc.) have been sought.
User’s Manual Description:
Information about target population experiences and expectations of health care should inform the development of guidelines. There are various methods for ensuring that these perspectives inform the different stages of guideline development by stakeholders. For example, formal consultations with patients/public to determine priority topics, participation of these stakeholders on the guideline development group, or external review by these stakeholders on draft documents. Alternatively, information could be obtained from interviews of these stakeholders or from literature reviews of patient/public values, preferences or experiences. There should be evidence that some process has taken place and that stakeholders’ views have been considered.
Where to Look:
Examine the paragraphs on the guideline development process. Examples of commonly labeled sections or chapters in a guideline where this information can be found include: scope, methods, guideline panel member list, external review, and target population perspectives.
How to Rate:
Item content includes the following CRITERIA:
- statement of type of strategy used to capture patients’/public’s’ views and preferences (e.g., participation in the guideline development group, literature review of values and preferences)
- methods by which preferences and views were sought (e.g., evidence from literature, surveys, focus groups)
- outcomes/information gathered on patient/public information
- description of how the information gathered was used to inform the guideline development process and/or formation of the recommendations
Additional CONSIDERATIONS:
- Is the item well written? Are the descriptions clear and concise?
- Is the item content easy to find in the guideline?
