Introduction

What is WaihonaPedia?

WaihonaPedia is an online platform specially developed by, and for people with a rare disease, their families and others that work with them. 

WaihonaPedia is a new kind of website for and from your patient organisation. This site may also work well with e.g. your Facebook group. 

Together you determine who will be admitted to the platform. You can also invite experts to contribute. With this, a community that can be trusted is built where information can be found about the condition, read other people's experiences, share your story, ask questions and develop the knowledge together with other experts. 

Why join?

By participating in WaihonaPedia you not only find solutions for your own situation, but you also help and support others in their search. Learning together by sharing with each other, that is WaihonaPedia! 

WaihonaPedia is never complete, together we can identify what is good, but also what can be improved. Your input is crucial. With your input and your ideas we can make WaihonaPedia ever better. 

Do you want to stay informed?

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