blocks
FEDERATION COUNCIL MEETING
| Martes | 08/11/2022 | Speakers and Supporters | ||
|---|---|---|---|---|
| World Federation Meeting (Part 1) | 08:30 | 10:40 | ||
| Coffee Break | 10:40 | 11:00 | ||
| World Federation Meeting (Part 2) | 11:00 | 12:40 | ||
| LUNCH | 12:40 | 14:30 | ||
| Create new block starting at 14:30 | ||||
CdLS World SAC (Scientific Advisory Committee) meeting
| Martes | 08/11/2022 | Speakers and Supporters | ||
|---|---|---|---|---|
| CdLS-SAC Meeting | 08:30 | 10:40 | ||
| Coffee Break | 10:40 | 11:00 | ||
| Presentation of Abstracts | 11:00 | 12:40 | ||
| LUNCH | 12:40 | 14:30 | ||
| Create new block starting at 14:30 | ||||
CONFERENCE FOR FAMILIES
| Miércoles | 09/11/2022 | Speakers and Supporters | ||
|---|---|---|---|---|
| Registration | 08:30 | 09:30 | ||
| Opening ceremony | 09:30 | 10:10 | ||
| Coffee Break | 10:10 | 10:40 | ||
| Let's talk about orphan (rare) diseases | 10:40 | 11:00 | ||
| CdLS ABC for families | 11:00 | 11:20 | ||
| Growth and Growth charts in CdLS | 11:20 | 11:40 | ||
| Questions | 11:40 | 12:40 | ||
| LUNCH | 12:40 | 14:40 | ||
| Adulthood in patients with CdLS - Sexuality and reproductive issues | 14:30 | 14:50 | ||
| Importance of Patients Associations | 14:50 | 15:10 | ||
| CdLS in Colombia: Overview | 15:10 | 15:30 | ||
| Questions | 15:30 | 16:00 | ||
| Panel of parents, sibs and caregivers | 16:00 | 18:00 | ||
| Create new block starting at 18:00 | ||||
| Jueves | 10/11/2022 | Speakers and Supporters | ||
|---|---|---|---|---|
| Gastroenterological issues in patients with CdLS | 08:30 | 09:10 | ||
| Dental care in patients with CdLS | 09:10 | 09:30 | ||
| Questions | 09:30 | 10:40 | ||
| Coffe Break | 10:40 | 11:00 | ||
| Orthopedical issues in CdLS | 11:00 | 11:20 | ||
| Neurological issues in children with CdLS | 11:20 | 11:40 | ||
| Neurological issues in adults with CdLS | 11:40 | 12:00 | ||
| Questions | 12:00 | 12:40 | ||
| LUNCH | 12:40 | 14:30 | ||
| Clinics | 14:30 | 16:00 | ||
| Panel of Disabilities and Human Rights in Rare Diseases | 16:00 | 18:00 | ||
| Create new block starting at 18:00 | ||||
| Viernes | 11/11/2022 | Speakers and Supporters | ||
|---|---|---|---|---|
| Fenotipos Cognitivos y Comportamentales en transtornos neurogeneticos | 08:30 | 08:50 | ||
| Communication and behavioral issues in CdLS | 08:50 | 09:10 | ||
| Use of medications for behavioral challenges in CdLS | 09:10 | 09:30 | ||
| Questions | 09:30 | 10:40 | ||
| Coffee Break | 10:40 | 11:00 | ||
| School and social issues in ASD and CdLS | 11:00 | 11:40 | ||
| How to arrive to the diagnosis of CdLS and the importance for families and patient associations | 11:40 | 12:00 | ||
| LUNCH | 12:40 | 14:30 | ||
| Clinics | 14:30 | 16:00 | ||
| Panel of Siblings | 16:00 | 18:00 | ||
| Create new block starting at 18:00 | ||||
CONFERENCE FOR DOCTORS AND CAREGIVERS
| Miércoles | 09/11/2022 | Speakers and Supporters | ||
|---|---|---|---|---|
| Registration | 08:30 | 09:30 | ||
| Opening ceremony | 09:30 | 10:10 | ||
| Coffee break | 10:10 | 10:40 | ||
| General overview for health professionals | 10:40 | 11:00 | ||
| Pediatric issues in CdLS | 11:00 | 11:20 | ||
| Adults with CdLS in Poland | 11:20 | 11:40 | ||
| Questions | 11:40 | 12:40 | ||
| LUNCH | 12:40 | 14:30 | ||
| Molecular diagnosis of CdLS: Present and future | 14:30 | 14:50 | ||
| Prenatal issues in CdLS: Early detection and management | 14:50 | 15:10 | ||
| Clinical differential diagnosis of CdLS | 15:10 | 15:30 | ||
| Questions | 15:30 | 16:00 | ||
| Create new block starting at 16:00 | ||||
| Jueves | 10/11/2022 | Speakers and Supporters | ||
|---|---|---|---|---|
| Inicio del día | 08:30 | 08:35 | ||
| Neurological issues in children with CdLS | 08:35 | 09:00 | ||
| Neurological issues in children with CdLS | 09:00 | 09:20 | ||
| Orthopedical issues in CdLS | 09:20 | 09:40 | ||
| QUESTIONS | 09:40 | 10:10 | ||
| Coffee Break | 10:10 | 10:25 | ||
| Dental care in patients with CdLS | 10:25 | 10:45 | ||
| Gastroenterological issues in patients with CdLS | 10:45 | 11:25 | ||
| QUESTIONS | 11:25 | 11:55 | ||
| Panel of parents, sibs and caregivers | 11:55 | 12:30 | ||
| LUNCH | 12:30 | 14:00 | ||
| Create new block starting at 14:00 | ||||
| Viernes | 11/11/2022 | Speakers and Supporters | ||
|---|---|---|---|---|
| Inicio del día | 08:30 | 08:30 | ||
| School and social issues in CdLS. ASD and CdLS | 08:35 | 09:20 | ||
| Neurosensorial issues in CdLS | 09:20 | 09:40 | ||
| QUESTIONS | 09:40 | 10:10 | ||
| Coffee Break | 10:10 | 10:25 | ||
| Communication and behavioral issues in CdLS | 10:25 | 11:05 | ||
| empty slot | 11:05 | 11:25 | ||
| QUESTIONS | 11:25 | 11:55 | ||
| Panel of health professionals | 11:55 | 12:30 | ||
| LUNCH | 12:30 | 14:00 | ||
| Create new block starting at 14:00 | ||||
WORKSHOPS FOR PARENTS, SIBLINGS AND CARERS
| Miércoles | 09/11/2022 | Speakers and Supporters | ||
|---|---|---|---|---|
| Inicio del día | 14:00 | 14:00 | ||
| Create new block starting at 14:00 | ||||
| Jueves | 10/11/2022 | Speakers and Supporters | ||
|---|---|---|---|---|
| Inicio del día | 14:00 | 14:00 | ||
| Create new block starting at 14:00 | ||||
| Viernes | 11/11/2022 | Speakers and Supporters | ||
|---|---|---|---|---|
| Inicio del día | 14:00 | 14:00 | ||
| Create new block starting at 14:00 | ||||
CLOSING DAY OF THE WORLD CONFERENCE
| Sábado | 12/11/2022 | Speakers and Supporters | ||
|---|---|---|---|---|
| Inicio del día | 08:30 | 08:30 | ||
| Create new block starting at 08:30 | ||||
