The Family conference

Thursday July 23 (evening) – to Sunday July 26 (Breakfast)

There is a packed conference programme where families can learn of the latest developments and strategies for working with people affected by CdLS and hear of health treatments and threats long before the information becomes published. Many of the professionals will be on hand to hold individual private consultations with families to help assess issues affecting the person with CdLS.

The event will start with individual meetings for different countries run by their national professional directors and will give a précis of the SAC meeting in their home language. All main sessions will have simultaneous translation for those languages for which there are 10 or more families attending.

The UK is also looking for language volunteers to help with interpretation for doctor consults. Meantime we are planning a series of trips out suitable for all ages for the siblings and young people attending the conference. And in the evenings there is plenty of fun for all the family at our planned social events.