10th World Conference Cornelia de Lange Syndrome 2019

Together experts and families search for answers, find solutions and share best practice. Our understanding of CdLS is increased and families are better able to deal with challenges of raising their children.

Together we strengthen friendship, in an emotionally safe environment. Parents are supported and encouraged to share concerns and and celebrate triumphs.

Family conference

 There is a packed conference program on Friday and Saturday where families can learn of the latest developments and strategies for working with people affected by CdLS and hear of health treatments and risks long before the information becomes...

Scientific Symposium

 There is a one-day conference on Thursday looking at the challenges facing professionals working with somebody affected by a condition like CdLS where the well-documented problems of autism are complicated by a myriad of medical issues. We hope that...

Sibling program

 It is very important for us that sisters, brothers and other family members join the family to our event.

So parallel to the conference there will be lots to do for them in a separate side program.

The location

The conference venue

Dorint Park Hotel

Just 30 minutes away from Cologne / Bonn airport, the Dorint Parkhotel Bad Neuenahr is the place for pure motivation! Set amongst the vineyards right on the River Ahr and the Dahlia Garden, we can...

CdLS World federation council meeting

 As each 2 years in the past 20 years of history for the CdLS World community representatives of all the countries around the world will come together and learn best-practices from each other and bring home valuable lessons learned...

CdLS World federation Scientific Advisory Committee (SAC) meeting

 More and more experts in the field of Medical, Cognitive, Care, Family consulting-services have discovered a passion for the rare Cornelia the Lange syndrome.

As with the federation members they gather each 2 years to share the latest research and...

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