10th World Conference Cornelia de Lange Syndrome 2019

Together experts and families search for answers, find solutions and share best practice. Our understanding of CdLS is increased and families are better able to deal with challenges of raising their children.

Together we strengthen friendship, in an emotionally safe environment. Parents are supported and encouraged to share concerns and and celebrate triumphs.

Family conference

 There is a packed conference program on Friday and Saturday where families can learn of the latest developments and strategies for working with people affected by CdLS and hear of health treatments and risks long before the information becomes...

 published. Many of the professionals will be on hand to hold individual private consultations with families to help assess issues affecting the person with CdLS.

The event can start with individual meetings for different countries run by their national professional directors and will give a summary of the SAC meeting in their own language.

All main sessions will have simultaneous translation for those languages for which there are 20 or more persons attending. We are also looking for language volunteers to help with interpretation for doctor consults.

We are planning a series of trips out suitable for all ages for the siblings and young people attending the conference. And in the evenings there is plenty of fun for all the family at our planned social events.

Show detail program (still under construction)

Scientific Symposium

 There is a one-day conference on Thursday looking at the challenges facing professionals working with somebody affected by a condition like CdLS where the well-documented problems of autism are complicated by a myriad of medical issues. We hope that...

 by addressing some of those issues and looking at an holistic approach to the treatment and management of people affected we will be able to develop a model of care that can be shared internationally. This will help people into the future.

Show detail program of the symposium

The conference Area

Bad Neuenahr-Ahrweiler

For a long time people have travelled to Bad NeuenahrAhrweiler during summer to take advantage of all this region has to offer. For different reasons: some want to improve their health. Gourmets and culinary lovers love the good...

 life with fine wines and great restaurants. The active guests appreciate the wide range of sporting activities that Waldkletterpark, Rotweinwanderweg, Ahrsteig and Nordic Fitness Park have to offer. Culture fans expand their thirst for knowledge in the Roman villa, within the Ahrweiler city wall or in the cultural offerings in the spa park. In addition, numerous parks, walking paths along the Ahrufers, swimming pools or sidewalk cafés invite you to relax. Holiday mood is everywhere.

In the middle of the Ahr valley, between forests and vineyards, lies the town of Bad Neuenahr-Ahrweiler. Cultural diversity is particularly evident in architectural structures. Thus, in Ahrweiler, the influence and rule of the Romans is reflected. Buildings such as the city gates or the historic city walls bear witness to the long-gone era. The district of Bad Neuenahr, on the other hand, is a witness to the glamorous imperial era, whose influence is still recognizable today in the most diverse buildings and streets and has lost nothing of its elegance. Varied entertainment, state-of-the-art quality standards, historic buildings amidst the picturesque landscape of the Ahr Valley - this is Bad Neuenahr-Ahrweiler.

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