Stories and News

Here we present news from the worldwide Cornelia de Lange syndrome community. We invite everybody to come here and tell us about your community events, you community milestones.

For personal stories we recommend that you go to your personal dashboard and add them there, if you want they will show in this blog after you completed your story 


Goodbye to a Legend - Dr. Laird Jackson

It is with heavy hearts that we learned of the recent passing of Dr. LAIRD JACKSON. ... Read more…


There is a great work of volunteer experts completed. The first international agreed collection of all we know about CdLS ... Read more…

Website changed

The website should be 'calm' and easy to read, with less distractions. Please read ... Read more…

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