Can individuals with CdLS have children?
For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange Syndrome.
A small number of women with CdLS have given birth. Often, mothers have only been diagnosed after their child has been diagnosed with CdLS. Few men with CdLS have fathered a child, though there is little data about fertility in males with CdLS.
Sexual education should be offered to individuals with CdLS and education should be appropriate to the level of understanding. Contraceptive options are the same as for the general population.
Recommendation(s)
Can individuals with CdLS have children?
R20
Sexual education appropriate to the level of understanding should be offered, and contraception management should follow local standard for the general population.
R21
Hysterectomy is indicated if abnormally heavy bleeding at menstruation is present and does not respond to medical treatment.
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our Questions and Answers of our experts
Birth Control and Weight Gain
Puberty/Birth Control
Genitourinary Issues
Menstruation
Sexuality
Body odor and bloody diaper
Heredity and level of affectedness with CdLS
Birth Control: Depo-Provera vs. the patch, Premenstrual symptoms
Sperm Production
Menstrual Cycle
Male Sex Hormones
Menstruation
Irregular Menstruation
