Family-members, a Crucial Resource
Eltern, Betreuer, Gesundheitsdienstleister und Lehrer haben oft Bedenken und Fragen zur Pflege und zum Wohlbefinden von Menschen mit Cornelia-de-Lange-Syndrom.
If you have children, you likely identify yourself first and foremost as a parent. If you are a brother or sister it is important to enjoy being part of your family.
Being a family-member is an all‐consuming, extremely tiring, always exciting, tremendously stressful, potentially thankless but incredibly rewarding job.
Being a family-member of a child with a number of medical and/or developmental complications; there are additional responsibilities, stresses and rewards.
But it does also put's a burden on yourself, your ambitions.
xwiki:WaihonaPartners.deDuisburgEssen.WebHome
